Not only a lovely tribute to Dr. Hyde, but a wealth of information. Thank-you so much for writing this, Colleen, for giving people some essential information about Dr. Hyde's very appropriate opinion of "the powers that be", and for directing people to his books, other writing, and interviews. He was, since the 1980s, one of the world's (very few) true experts on M.E.. The world and the M.E. community have lost an exceptional diagnostician and a kind and dedicated man.
Coleen I too am saddened that we have lost Dr Byron Hyde. I hope he had a peaceful passing.
I fell ill 31 years ago. It took 13 years to get a diagnosis! Even then there was absolutely no information. Luckily I found Caring For The M.E. Patient by Jodi Bassett of the Hummingbird Foundation for M.E. (2011). Lots of input from Dr Paul Cheney and Byron Hyde.
I’ve photocopied sections for GPs as I don’t have the endurance to explain/justify my Very Severe (90%) disability. They have failed to read and thus modify their attitudes.
My level of disability and refusal to get out of bed to attend a minor injuries unit which was the response of a visiting doctor when she was examining me in my bed, would have necessitated a 24 mile round trip.
I complained to the Practise and the response psychologised my refusal.
But I’m not letting them get away with it. I have escalated my complaint to the highest authority in the UK. The Parliamentary And Health Service Ombudsman.
Definitely a huge loss. I am sorry he didn't get to follow up with you. That would have been valuable info. So frustrating that other researchers aren't willing to follow up.
Thank you Colleen for this heartfelt tribute to Dr.Hyde. It expresses the feelings of many in the M.E. Community. Dr.Hyde was a devoted champion for us and we owe him a debt of gratitude that can never be repaid. May he rest in peace with our sincere thanks !
Not only a lovely tribute to Dr. Hyde, but a wealth of information. Thank-you so much for writing this, Colleen, for giving people some essential information about Dr. Hyde's very appropriate opinion of "the powers that be", and for directing people to his books, other writing, and interviews. He was, since the 1980s, one of the world's (very few) true experts on M.E.. The world and the M.E. community have lost an exceptional diagnostician and a kind and dedicated man.
Thank you Allison. I suspect many don't realize how important his work has been. He will be missed!
Coleen I too am saddened that we have lost Dr Byron Hyde. I hope he had a peaceful passing.
I fell ill 31 years ago. It took 13 years to get a diagnosis! Even then there was absolutely no information. Luckily I found Caring For The M.E. Patient by Jodi Bassett of the Hummingbird Foundation for M.E. (2011). Lots of input from Dr Paul Cheney and Byron Hyde.
I’ve photocopied sections for GPs as I don’t have the endurance to explain/justify my Very Severe (90%) disability. They have failed to read and thus modify their attitudes.
My level of disability and refusal to get out of bed to attend a minor injuries unit which was the response of a visiting doctor when she was examining me in my bed, would have necessitated a 24 mile round trip.
I complained to the Practise and the response psychologised my refusal.
But I’m not letting them get away with it. I have escalated my complaint to the highest authority in the UK. The Parliamentary And Health Service Ombudsman.
Jodi, Cheney & Hyde offered many of us a much needed life line.
Sorry for what you are going through. I hope you can get that addressed... not just for yourself but everyone coming after you.
In 2019 Dr Hyde agreed to come back to Incline Village to take another look at the origin of Chronic Fatigue Syndrome.
Then covid hit and the plan was put on hold.
Very sad that now it will never happen.
Dr Hydes passing is a monumental loss to science and medicine.
He was an irreplaceable witness to the ME-CFS history.
Definitely a huge loss. I am sorry he didn't get to follow up with you. That would have been valuable info. So frustrating that other researchers aren't willing to follow up.
Wow, was he in bad health? This is sad news, indeed. He was one of the truly "good guys." Irreplaceable.
Truly a good guy. I agree he is irreplaceable.
Thank you Colleen for this heartfelt tribute to Dr.Hyde. It expresses the feelings of many in the M.E. Community. Dr.Hyde was a devoted champion for us and we owe him a debt of gratitude that can never be repaid. May he rest in peace with our sincere thanks !
Thank you Barbara. I hope he knew how much his work was appreciated.