NIH ME/CFS Roadmap Feedback Update

Deadline March 8, 2024

The following is an update to the previous article, NIH ME/CFS Research Roadmap which covers giving comments on the proposed roadmap. NIH has offered an alternate way to offer feedback instead of using IdeaScale.

The following is taken directly from the NIH MECFS Information List service email dated Feb 12.  

Same rocks as the original post on this topic. 

The email from NIH:

“We are writing to offer an email option to provide input and feedback on the ME/CFS Research Roadmap research priorities that are currently posted on IdeaScale.  We recognize that IdeaScale can be challenging to navigate, so please provide comments on any of the research priorities to: mecfsresearchroadmap@ninds.nih.gov

When you submit your feedback and comments via email, please also let us know the following:

1. Would like us to post your feedback/comments on IdeaScale for you?  Answer: Yes/No

2. Would like us to post your feedback/comments anonymously or with your name?  Answer: Anonymously/With my name:  please provide your full name

Please send any questions about this process to the email address provided:  mecfsresearchroadmap@ninds.nih.gov

To learn more about the ME/CFS Research Roadmap and to view the research webinars, visit: https://www.ninds.nih.gov/about-ninds/who-we-are/advisory-council/nandsc-mecfs-research-roadmap-working-group”

This information has been added to the previous article.  

Colleen

Information provided here or in comments is not to be considered medical advice