Your view is very interesting Colleen as so many pwME are calling for ME to be part of this moonshot. But I think your view makes absolute sense in terms of understanding different categories of the covid disease.
Thank you for the feedback. There has been a pattern of lumping multiple groups under vague criteria. I consider that part of the systemic institutional bias pwME have suffered under. This has led to unreproducible research findings. We need to learn from the past for all of us to have a better future.
I am angered every time I read an article about Long Covid that never once brings up ME, as if we do not exist, as if we weren't "there first." However, I am decidedly in favor of viewing these two diseases separately as I think they ARE NOT the same disease. They are so many similarities, and I am not against comparing the two. I am, however, against considering them as equals.
Your view is very interesting Colleen as so many pwME are calling for ME to be part of this moonshot. But I think your view makes absolute sense in terms of understanding different categories of the covid disease.
Thank you for the feedback. There has been a pattern of lumping multiple groups under vague criteria. I consider that part of the systemic institutional bias pwME have suffered under. This has led to unreproducible research findings. We need to learn from the past for all of us to have a better future.
You raise several excellent points, Colleen. Thank you for this.
I am angered every time I read an article about Long Covid that never once brings up ME, as if we do not exist, as if we weren't "there first." However, I am decidedly in favor of viewing these two diseases separately as I think they ARE NOT the same disease. They are so many similarities, and I am not against comparing the two. I am, however, against considering them as equals.
This is really excellent, Colleen. Many thanks. It will help me compose my comment.
Thanks, Colleen, for your thoughtful piece.