Thank you for posting this Colleen. I'll read through all of Jeannette Burmeister's papers. I'll also follow her recommendations for filing complaints against the NIH. I wholeheartedly agree that there should be an investigation of the NIH, CDC and WHO for the 40 plus years of gross neglect of ME/CFS. It's about time and I'll pray this happens!
That is an excellent question. One I've been asking since not long after it was written in 2011. Many are using it... so there's no reason why everyone isn't using it for ME research.
As for what the NIH studied and published about... I don't consider that an ME specific study. Some of the biological findings may apply to ME but now we have to wait for better researchers to use ME patients to see if the findings hold up.
Thank you for posting this Colleen. I'll read through all of Jeannette Burmeister's papers. I'll also follow her recommendations for filing complaints against the NIH. I wholeheartedly agree that there should be an investigation of the NIH, CDC and WHO for the 40 plus years of gross neglect of ME/CFS. It's about time and I'll pray this happens!
That's great to hear. The more who can submit the better.
Why isn't the ICC used for patient selection?
That is an excellent question. One I've been asking since not long after it was written in 2011. Many are using it... so there's no reason why everyone isn't using it for ME research.
As for what the NIH studied and published about... I don't consider that an ME specific study. Some of the biological findings may apply to ME but now we have to wait for better researchers to use ME patients to see if the findings hold up.
o