Colleen did you get the email from NIH in the past couple of days ? It looks like they realized, or more likely were told by patients, that the feedback process/format that they had offered was HARD for pwme, so they have offered some alternatives..
Maybe you could add an update on this? Thanks so much.
Thank-you Colleen. This is way beyond my cognitive abilities at this point in time. I hope that as many patients who are able to, will respond with our priorities and also amplify the points you have made and are making in your articles.
This looks like something I want to be involved in. Thank you for the great work you are doing keeping us informed on all this stuff
Colleen did you get the email from NIH in the past couple of days ? It looks like they realized, or more likely were told by patients, that the feedback process/format that they had offered was HARD for pwme, so they have offered some alternatives..
Maybe you could add an update on this? Thanks so much.
Thanks! That is a good idea. Hopefully will get that out soon.
Thank-you Colleen. This is way beyond my cognitive abilities at this point in time. I hope that as many patients who are able to, will respond with our priorities and also amplify the points you have made and are making in your articles.