7 Comments
Feb 23Liked by Colleen Steckel: ME-ICC Info

I hate that we seem like we will be forever stuck with these definitions that negate our actual disease! But I appreciate the work that you do to fight the ignorance out there.

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Apr 9Liked by Colleen Steckel: ME-ICC Info

Thank you so much for writing this. I have saved it for future use!

I hate that we are stuck with words like 'malaise' and 'fatigue' to describe ME. These are so inadequate.

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Couldn't agree more. I am working on an article about changing the narrative. To stop using words like malaise & fatigue. We need alternative narratives that are more accurate.

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Aug 13Liked by Colleen Steckel: ME-ICC Info

Wow! In my very uneducated opinion, I think you've encapsulated it entirely Colleen! I've long felt that "Malaise" sounds like a psychological state, a mood, a scenario, rather than a breakdown of normal biological processes.

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Jun 5, 2023Liked by Colleen Steckel: ME-ICC Info

Good stuff Colleen

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Thank you!

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Thank you Andrew. I know we aren't alone in finding that term inaccurate...

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