I hate that we seem like we will be forever stuck with these definitions that negate our actual disease! But I appreciate the work that you do to fight the ignorance out there.
Couldn't agree more. I am working on an article about changing the narrative. To stop using words like malaise & fatigue. We need alternative narratives that are more accurate.
Wow! In my very uneducated opinion, I think you've encapsulated it entirely Colleen! I've long felt that "Malaise" sounds like a psychological state, a mood, a scenario, rather than a breakdown of normal biological processes.
I hate that we seem like we will be forever stuck with these definitions that negate our actual disease! But I appreciate the work that you do to fight the ignorance out there.
Thank you so much for writing this. I have saved it for future use!
I hate that we are stuck with words like 'malaise' and 'fatigue' to describe ME. These are so inadequate.
Couldn't agree more. I am working on an article about changing the narrative. To stop using words like malaise & fatigue. We need alternative narratives that are more accurate.
Wow! In my very uneducated opinion, I think you've encapsulated it entirely Colleen! I've long felt that "Malaise" sounds like a psychological state, a mood, a scenario, rather than a breakdown of normal biological processes.
Good stuff Colleen
Thank you!
Thank you Andrew. I know we aren't alone in finding that term inaccurate...