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Aug 31, 2023Liked by Colleen Steckel: ME-ICC Info

I believe what was found nearly 40 years ago by virologists Elaine Defreitas (an HTLV-2 like virus) during the Lake Tahou outbreak is what's behind many of the Chronic Fatigue Immune Deficiency Syndrome cases. She had documented overwhelming evidence. They could have had a cure by now. For some reason, the CDC did not want to reproduce or validate her findings. Currently, I think many of these scientists / virologists are going down the wrong investigational path for these diseases. Take a more detailed look at what was found 40 years ago.

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Thank you for bringing this up. I remember when this was happening, but I didn't follow it closely enough to speak on the research. I agree this is research that should have been followed up on LONG before now.

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Aug 31, 2023Liked by Colleen Steckel: ME-ICC Info

Makes sense to me. I know mostly first hand of a few people who were helped with a combo of HIV drugs. Took 4 months to start working in one. "They" will give HIV drugs to babies, but not to somebody who is really sick, is my big complaint about that. I have a FB friend who actually saw Lerner, not long before he died. Not helpful and in fact hurtful. She had been sick most of her life and just throwing antivirals at somebody doesnt help. Support is needed, in my opinion. I read a lot of his stuff years ago and my conclusion then was something like the longer you had been sick, the less likely to help. I got my virus info about 15? years or so ago, during the surge of Fibro and Fatigue clinics, Teitlbaum. Dropped a lot of $$ there. At that time, you could only get antibody titers, not actual live virus. I think it remains that way.?? I had high EBV about 10 years ago, I am assuming that was antibody titers, but I dont really know.

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Thanks for sharing that. Sorry to hear about your friends experience. So much of what we have all experienced with even the best doctors has been hit and miss. I am hoping that with EBV being implicated in MS and other diseases, the testing/treatment options will improve.

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Sep 1, 2023Liked by Colleen Steckel: ME-ICC Info

Yes, when my EBV was tested it was being considered again in ME.

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